Treatment
There is no known cure for facioscapulohumeral muscular dystrophy. Treatments are given to control symptoms and improve the person’s quality of life. Activity is encouraged. Inactivity such as bedrest can make the muscle disease worse. Physical therapy may help maintain muscle strength.
Prognosis (Expectations)
Disability is often minor. Lifespan is usually not affected.
Complications
- Decreased mobility
- Decreased ability to care for self
- Deformities of the face and shoulders
- Hearing loss
- Vision loss (rare)
Calling Your Health Care Provider
Call for an appointment with your health care provider if symptoms of this condition develop.
Genetic counseling is recommended for couples with a family history of this condition who wish to have children.
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Facioscapulohumeral muscular dystrophy : Overview, Causes, & Risk Factors
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Facioscapulohumeral muscular dystrophy : Symptoms & Signs, Diagnosis & Tests
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Facioscapulohumeral muscular dystrophy : Treatment
Review Date : 3/9/2010
Reviewed By : Neil K. Kaneshiro, MD, MHA, Clinical Assistant Professor of Pediatrics, University of Washington School of Medicine; Daniel B. Hoch, PhD, MD, Assistant Professor of Neurology, Harvard Medical School, Department of Neurology, Massachusetts General Hospital. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
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